Not lot people knew condition Victoria said Room interview week home Marlborough I would like show people like condition The also TikTok star dancing way hearts 1 4 million followers raising awareness osteogenesis imperfecta rare brittle bone disorder battles Victoria Teno 11 years old stands 2 feet 10 inches tall speaks client Portuguese Pomerania By Like many TikTok obsessed weeks Victoria account filled mostly called get ready clips puts make goes skin care routine style hair But also sprinkled dance video Advertisement I like inspire people Victoria said I dancing since I 5 Victoria launched TikTok account November weeks underwent almost 12 hour surgery Boston Children Hospital correct 82 degree curve spine The already rods thighs ships upper arms prevent deformities broken bones Met Globe Weather Forecast Your essential daily forecast delivered daily 6 30 Enter Email Sign Up Victoria Teno 11 rode around living room jumper car May 7 dog By played together Victoria osteogenesis imperfecta become TikTok star helping raise awareness rare bone disorder Jessica Rinaldi Globe Staff To prepare surgery Victoria wore halo device fixed skull linked tall wheeled frame help straighten spine Her movements encumbered took moment shoot dance video bursting moves like back dancer tour Beyond The video became sensation TikTok drawing nearly 73 million views 8 2 million likes The vicious energetic fun loving also incredibly smart insightful 11 year old girl said Error Mortimer Victoria pediatric orthopaedic surgeon pass Memorial Medical Enter Among kiss I know osteogenesis imperfecta taken stride well better anybody I know Advertisement Victoria Type III osteogenesis imperfecta affects fewer one every 100 000 people Type III causes small brittle bones melt like marshmallows said Mortimer performed one 15 forgeries The condition also affects bone growth disease smaller stature Victoria familiar pain broken bone The mother Maria Mania Teno lost count many fractures Victoria suffered estimate number 55 It hard everything said You need careful everything Even bounding friend trampling difficult Victoria said I start crying Victoria said I got scared hurts I got scared I know I break worst One stops Victoria mother said The described daughter strong happy lot energy Victoria translated Portuguese Is fifth grade Victoria problem managing schoolbook still plenty time put together get ready video 1 4 million people said Next year moves middle school leap describes terrifying Beyond school Victoria big plans The wants osteogenesis imperfecta specialist performing forgeries helping people condition To I take care people like Victoria said I actually know whole lot stuff syndrome I tell parents I explain Advertisement Victoria hopes someday work Boston Children Hospital pass Memorial Medical Enter Of anyone Mortimer said Victoria Teno 11 smiled dad Don posed portrait beside mother Maria Mania Teno Jessica Rinaldi Globe Staff Va Merger reached va merger globe com Follow Va Merger

Vitoria Bueno는 TikTok 스타입니다. 140만 명의 팔로워들의 마음속으로 춤추며 들어가 그녀가 겪고 있는 골형성 불완전증에 대해 교육하고 있습니다.

Vitoria Bueno is a TikTok star — dancing her way into the hearts of 1.4 million followers and educating them about her battle with osteogenesis imperfecta.

말보로 틱톡 스타, 11세, 희귀한 뼈가 약한 질환에 대해 팔로워들에게 가르친다